Answers about our work.
About the foundation, SOX2 gene deletion, anophthalmia, donations, and how to get involved.
What is the Elio Ever After Foundation?
Elio Ever After Foundation is a nonprofit supporting blind and visually impaired children and their families through sensory-rich experiences, accessibility resources, tactile learning, community events, and emotional support.
Who does the foundation serve?
We serve blind and visually impaired children, including those with rare conditions like SOX2 gene deletion and bilateral anophthalmia, along with their parents, siblings, educators, and care teams.
What is SOX2 gene deletion?
SOX2 gene deletion (SOX2 anophthalmia syndrome) is a rare genetic condition where a missing or altered SOX2 gene affects early eye development, often resulting in anophthalmia (no eyes) or microphthalmia (small eyes), and sometimes affects the brain, pituitary gland, and growth.
What is bilateral anophthalmia?
Bilateral anophthalmia means a child is born without either eye. It is very rare and is often part of a broader genetic syndrome like SOX2. Children typically wear conformers and prosthetic shells to support normal facial growth.
How can I donate?
You can donate securely via PayPal at paypal.me/Elioeverafter. 100% of donations support sensory experiences, accessibility resources, and family programs for blind and visually impaired children.
Where is the foundation based?
We are based in Houston, Texas, and serve families across the United States and internationally through virtual programs.
Can I volunteer or partner with the foundation?
Yes. Volunteers, sponsors, schools, museums, and brands are all welcome. Reach out through our contact page to start a conversation.
Do you offer virtual support for families outside Houston?
Yes — virtual support and accessibility services are being launched to support blind and visually impaired children and their families worldwide.
How can I contact the foundation?
Email cindy.larotta1@gmail.com or call (832) 212-4748. You can also use the contact form on our website.
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